Lydia and I had the opportunity to go to Baltimore to meet up with someone very special. Campomelic dwarfism is very rare and it is considered one of the top fatal forms. There are very few adults with this type skeletal displasia. Ms. R and her mom had traveled up from Florida to meet with Dr. Ain at Johns Hopkins. She is 26!! We connected through our yahoo group and exchanged phone numbers. Last week, we were able to go and have lunch at PF Changs and walk around Inner Harbor together. Lydia really was thrilled to meet someone with CD also. Ms. R is starting her own graphic design business and hopes to have her website up and running within the next few weeks. It was really nice to talk for a few hours with them and get to know them a little better.
After we left their company Lydia wanted to take in a little fun. So we headed to the aquarium for a few hours. Our day was filled with gratefulness and simple pleasures. I am so very blessed to have Lydia.
4 comments:
She is so beautiful. I'm so glad you fought so hard to keep her.
thank you for this pic of my beautiful princess....I have missed your posting greatly since Irene...I can see by these posts you've been very busy and yes Thayne is like father like son even when he was little Mike liked to take things apart and come up with all kind of things to do...Love and miss you ALL Nana
What an amazing person Ms. R sounds like, and I'm so glad Lydia was able to meet her!!! ♥
What a great opportunity for all of you! Lydia's story is an inspiring one, and she is beautiful.
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